Summary:
By Express News ServiceBENGALURU: About 150 children suffering from rare diseases took part in Racefor7, a multi-city run, to raise awareness on rare diseases. Conducted by the Organization for Rare Diseases India (ORDI) and sponsored by IQVIA, the run began from St Joseph’s Indian High School, near UB City. “They may be called rare but we cannot afford to ignore the 70 million rare disease patients in India. Prasanna Shirol, Founder Director, ORDI, and father of a rare disease patient, said, “About 50% of all rare disease patients are children. The theme for Rare Disease Day 2020 is ‘Reframe Rare for Rare Disease Day’ with the message that ‘Rare is many, rare is strong and rare is proud’..