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Abandoned girl child from Assam adopted by Spanish professor
His parents raised Rs 16-crore through a crowd-funding campaign started in February, earlier this year. Virat Kohli, Anushka Sharma, Anil Kapoor, Ajay Devgan and many celebrities from the TV industry came forward and donated.
The hard work of the parents of three-year-old Ayaansh, who lives in Hyderabad, has paid off. Ayaansh was given the US-manufactured drug Zolgensma on June 9, it is the world`s costliest injection. His parents raised Rs 16-crore through a crowd-funding campaign started in February, earlier this year.
Yogesh Gupta and Rupal Gupta`s son Ayaansh was administered this medicine on June 9 at Rainbow Children`s Hospital, Secunderabad under the supervision of Consultant Pediatric Neurologist Dr Ramesh Konnaki.
Many big actors like Virat Kohli and Anushka Sharma came forward to help Ayaansh, who is suffering from a rare disease called Spinal Muscular Atrophy (SMA) and Ayaansh needed an injection, which costs Rs 16 crore. It affects one in 8,000 children.
When the child was one year old, he was diagnosed with a disease called `Spinal muscular atrophy. Ayaansh`s father Yogesh Gupta works in a private company here. He said, `It is an extremely rare disease that causes weakness in the muscles. Due to this, the child cannot move his arms and legs, cannot sit, cannot stand and cannot even walk. There is also a problem with eating food`.
Struggle of a lifetime and here we are! Yesterday, Ayaansh has been dosed for Zolgensma, the 16 Cr. drug we hve bn talkn abt all this while. He`s stable & hopefully will improve from here. A big thank you to all our 65k donors for gvng a new life to my boy #savedayaanshgupta pic.twitter.com/jr58xwcEup
— AyaanshFightsSMA (@FightsSma) June 10, 2021
The couple raised enough funds for the treatment in 3 months. Virat Kohli, Anushka Sharma, Anil Kapoor, Ajay Devgan and many celebrities from the TV industry came forward and donated.
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